Tips for people with iMCD

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Lifestyle Tips

Small lifestyle changes can have a big impact

Living with idiopathic multicentric Castleman disease (iMCD) can mean making some lifestyle changes. Stay on top of your dosing schedule, plan your doctor visits, and report any side effects of your medication to your doctor immediately.

Here are some helpful tips:

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Diet

Some patients might experience an unintended change in weight. Eating the right kinds of foods and staying away from inflammatory foods can help you feel better and stay stronger. Talk with your doctor or a dietitian about any changes you may need to make to your diet.

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Physical activity

Exercising and staying active may help. Short walks, stretching exercises, and yoga are good options. Please consult your doctor before beginning an exercise routine.

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Yoga and meditation

Yoga and meditation can help relieve tension and anxiety, as well as improve your flexibility, sleep quality, strength, posture, and mental health. Look into taking in-person or online classes, or use apps for guided meditation.

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Flexible schedule

iMCD can take a toll on your mental and physical health. It can be difficult for some patients to continue working—at least until treatment starts to help control your symptoms. It can be important to plan for needed support and alternative working conditions during your time of treatment.

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Be prepared

Symptoms can return at any time. Keep all of your reports and medications handy in case you are redirected to other places of care. Ask your doctor about any actions you can take that will help you get the care you deserve.

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Share your experience

Talking to other patients with iMCD about your experience can be helpful. You can also share your iMCD experience with your family, friends, and followers online. Talking through your problems can help you understand them better, and it’s also good for your mental health. Raising awareness about this rare disease can help someone who has not been diagnosed yet.

You have to manage your health. You have to take care of your health. You have to fight for your health and your life.

Carl, living with iMCD since 2005 Watch Carl’s Story
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