Idiopathic multicentric Castleman disease (iMCD)

iMCD: Know the symptoms and learn how it’s diagnosed

Know what it takes to get diagnosed and treat iMCD

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Understanding iMCD: What it is and what it isn’t

Idiopathic multicentric Castleman disease (iMCD) is a serious, complex, and treatable condition. It affects multiple groups of swollen lymph nodes, and the symptoms can mimic cancerous, autoimmune, infectious, and various other disorders. This can make it extremely difficult for doctors to accurately diagnose iMCD.

Commonly observed symptoms that may make it difficult to diagnose iMCD

Tracking and reporting your symptoms can help shorten the time to diagnosis.

Multiple Swollen
Lymph Nodes

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Multiple Swollen
Lymph Nodes

Enlarged or swollen lymph nodes may be found throughout the body. Many patients experience this in their neck, armpit, stomach, or groin areas.

Enlarged Organs

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Enlarged Organs

Abnormal swelling or abdominal tenderness may be a sign of enlarged organs. The liver or spleen may be larger than normal.

Night Sweats

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Night Sweats

Repeated episodes of excessive sweating during sleep that can be caused by underlying conditions.

Flu-like Symptoms

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Flu-like Symptoms

Fever, night sweats, cough, fatigue, and unintentional weight loss, in combination with other symptoms.

Fluid Accumulation

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Fluid Accumulation

Swelling—excess fluid trapped in body tissues—may look like weight gain. Many patients experience this in their face, stomach, feet, and/or ankles.

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Are your symptoms a sign of iMCD?

Accurately reporting your symptoms to a doctor can help you get one step closer to receiving a correct diagnosis. 

Use the Symptom Checker to find out if your symptoms are consistent with iMCD. It’s important to remember that only a doctor can confirm an iMCD diagnosis. 

Symptom Checker

Select all of the symptoms you are currently experiencing.

Swollen Lymph Nodes

List the number of swollen lymph nodes and where they are located in your body

Date of last examination

Fatigue

How severe is your fatigue?

How many days per month do you experience fatigue?

Anemia

When was the last time you had a blood test?

Enlarged Organs

List the name(s) of the organ(s)

When did you find out about the enlarged organ(s)?

Night Sweats

How many days per month do you have night sweats?

When did your night sweats start?

Flu-like Symptoms

Which symptoms do you experience?

How many days per month do you experience these symptoms?

Unintended Weight Change

How many pounds have you lost?

When did you first notice any change in weight?

Rash

Select the symptom(s) that accurately describe your rash:

When did you first notice a rash?

Fluid Accumulation

On which part(s) of the body did you notice fluid accumulation?

When did you first notice fluid accumulation?

Fever

Unexplained fever episodes per year

If you know someone who has been struggling with the above-mentioned symptoms and hasn’t received a diagnosis yet, please share the Symptom Checker tool with them.

One morning, all my lymph nodes were swollen—the size of golf balls.

Carl, living with iMCD since 2005 WATCH CARL'S STORY
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The road to diagnosis

Still searching for a diagnosis? Here are some of the roadblocks and the steps you can take to get to the diagnosis faster.

Possible Roadblocks to Diagnosis image-description
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Raise awareness about iMCD

Share now to help us raise awareness so that people who might be suffering from this condition can get a proper diagnosis and receive the right treatment.